CHOOSING JOY is a book of hope. Most accounts of Alzheimer’s describe a process of irreversible degeneration and decline. This is a rare success story, the story of a woman who refused to surrender to the implications of her husband’s diagnosis, instead inspiring him to join her in making every moment they had together meaningful and precious. A few months after their fiftieth anniversary, Ady Berger was diagnosed with Alzheimer’s. He responded, I don’t want to live anymore. His wife, Helene, was determined to find creative ways to make their lives as fulfilling as possible, for as long as possible. By developing a solid foundation of constant mental stimulation and emotional support, they built the scaffolding that gave Ady the best chance for positive outcomes physically, emotionally, and socially. In Ady’s final years he again became known for his radiant smile, greeting friends by name, returning to the piano, playing chess, even drawing pictures and writing nightly notes. Helene Berger’s comprehensive guide chronicles the different elements that made this regeneration possible. Welcoming, positive, and honest, she shares her own difficult journey: her doubts and fears, failures and ultimate successes. CHOOSING JOY includes: The importance of acceptance by both patient and caregiver. Ideas to keep patients mentally stimulated and productive. The changes in perspective and attitude that can replace frustration and anger with kindness, appreciation,and support. Methodology for negotiating joint solutions to the progressive challenges of debilitating disease. Detailed strategies for hiring and bringing out the best in aides, creating schedules to avoid confusion, and creating a safe and healthy home environment. Optimal ways to work with healthcare providers and safely manage long lists of medications. How to find the delicate balance between giving the best of yourself while ensuring your own needs are fulfilled. The life-affirming insights Helene gleaned during and after the Alzheimer’s years. Caregivers of patients with any type of debilitating disease will find a wealth of information, ideas, and inspiration in CHOOSING JOY.
