About

About

Managed by five daughters who have experience the loss of a loved one with dementia, AlzAuthors serve the goal of making a difference to your dementia journey.

We chose to write about our personal stories to help others along their journey and now, we invite others to join us and become an AlzAuthor.

We know the pain of being forgotten.

We have all witnessed decline.

We have provided countless hours of caregiving.

We know many others have experienced the same and we believe in the power of sharing those stories.

Our AlzAuthors write words that serve as caregiver handbooks, guides through the disease process, or a catalyst for much needed conversation. We feature a new author each week and receive requests for inclusion from writers globally. We are 150 strong and growing.

May one of Our AUTHORS speak to your experience.

How it all began

In June of 2015, authors Marianne Sciucco, Jean Lee, and Vicki Tapia became cyber friends on social media after reading each other’s books. Recognizing the power of collaboration, the trio began promoting their books together and writing blog posts about Alzheimer’s, dementia, and caregiving for different caregiver websites. They believed three voices could increase impact.

A year later, Shannon Wiersbitzky joined the group. The team decided to create a website to gather resources in one place where caregivers and those living with memory impairment could find solid support, and authors could find the proper audience. They invited authors to write short posts about the story behind their story and these writings birthed AlzAuthors.com. Within that first year, over 60 authors became an “AlzAuthor.”


Our Collaboration Today

Now, two short years later, AlzAuthors.com continues to feature a new author weekly and receives requests for inclusion from writers worldwide. The website is fast approaching 150 authors. Kathryn Harrison and Ann Campanella have joined the team of volunteers with Marianne, Jean and Vicki in the administration of this not-for-profit website.

AlzAuthors.com is a community of bestselling, award-winning authors who have never shaken hands or shared a cup of coffee, yet came together because their lives have been impacted by Alzheimer’s and dementia.

AlzAuthors Bookstore is a vast, go-to collection of top books for individuals, assisted living facilities, doctor’s offices, and other businesses offering eldercare services. As an Amazon affiliate, the small percentage of proceeds earned from bookstore sales contributes to the cost of maintaining the website.

Together, all AlzAuthors strive to eliminate the stigma surrounding the most important disease of our generation, estimated to affect 47 million people worldwide.


2018 Highlights and Opportunities

  • AlzAuthors will speak at the Alzheimer’s Association Dementia Education Conference in Charlotte, North Carolina in August. Our AlzAuthors have donated over 60 books for this event!
  • AlzAuthors have also generously donated books for an Alzheimer’s and dementia-friendly cruise with Elite Cruises and Vacations in September. Cruise participants will receive these books as daily prizes. eBooks will also be offered on sale to cruise attendees.
  • AlzAuthors will publish an anthology of their first year’s blog posts in November, with the goal of reaching those who have not discovered the AlzAuthors website or prefer to read an eBook or paperback.

One can sing a lonely song, but we chose to form a choir and create harmony.

Follow AlzAuthors: 

AlzAuthors.com

@AlzAuthors on Twitter

Alzheimer’s and Dementia Resources Facebook Page

Instagram as @AlzAuthors


AlzAuthors Admin team:

Jean Lee’s parents were both diagnosed on the same day with Alzheimer’s Disease. She worked full time as an elementary teacher while experiencing the heartbreak, confusion, and exhaustion common to all caregivers. Through her memoir, Alzheimer’s Daughter, readers travel a journey beginning with a WWII romance, through aging and first suspicions to finally her parents’ last breaths. “I wrote the book I needed to read while caregiving for my parents,” she says. Her memoir is a beautiful but poignant tribute to her parents and a source of support for caregivers.


Vicki Tapia also cared for both parents. After teaching somewhere around 10,000 mother/baby pairs the art of breastfeeding, Vicki Tapia, lactation consultant, found her energies redirected to the other end of life, after both parents were diagnosed with dementia. A diary written to help her cope with caregiving morphed into Somebody Stole My Iron: A Family Memoir of Dementia, a finalist in the 2015 High Plains Book Awards. Called a “must read for caregivers,” this memoir is written in a conversational style, filled with personal lessons learned along the way, ideas and tips for managing the day-to-day difficulties of dementia, and useful information from experts within the field of Alzheimer’s research.


Marianne Sciucco is a registered nurse who cared for hundreds of dementia patients over a 20-year career.  Her novel, Blue Hydrangeas, an Alzheimer’s Love Story, is based on a couple she met through her work and is a testament to the power of love in the face of this heart wrenching disease. Marianne’s tender work of fiction brings consolation and understanding to all who encounter Alzheimer’s. Ironically, two years after her novel’s publication, she started living her own story, when a loved one was diagnosed with dementia. “Suddenly, I was the one with all the answers, all the responsibility. It’s overwhelming,” she says. “I immediately turned to my AlzAuthors friends to help navigate this stressful situation. The wealth of knowledge I have gained from my years as a nurse working with dementia patients and their families also keeps me sane.”


Kathryn Harrison was compelled to create a children’s book about dementia, Weeds in Nana’s Garden, following her mother’s passing from Frontotemporal dementia in 2010. During her family’s journey with the disease, she noticed how much involving her two young children in caregiving added value to the experience. Thus, she decided to create an engaging picture book that could reach many children, enhance their understanding of dementia and perhaps encourage them to connect more with those on this journey. The enchanting illustrations in Kathryn’s award-winning book enhance the poignancy of the loving story. It is available in English, French, German and Portuguese. What’s more, Kathryn has collaborated with another Dementia Care Expert, Jaclyn Guenette, and will be launching a new book for children about dementia this May.


Ann Campanella, a horsewoman and former magazine and newspaper editor, has been published nationally and internationally. She wrote her award-winning memoir, Motherhood: Lost and Found, after her mother developed Alzheimer’s at the same time Ann was trying to become a parent and experiencing infertility. Ann’s remarkable book records the ordinary and extraordinary courage of those who endure family tragedy, yet continue to find hope and beauty in their circumstances. Twice, Ann received the Poet Laureate Award from the North Carolina Poetry Society for poems written about her parents. Now, the grateful mother of a teenager, she enjoys writing, blogging, and making connections with others on the caregiving journey.

 

We are AlzAuthors: Writing. Sharing. Inspiring. Caring.
22 replies to About
  1. Wonderful! I’m keenly interested in all of your books. I have already downloaded Jean’s book and will be checking out the others as well. I have recently published a book about my mom’s Alzheimer’s experience in her nursing home. It’s my goal, like yours, to give comfort and hope to others making a similar journey. Best wishes to all!

    Liked by 1 person

  2. Hi Jean, that’s very nice of you! It’s called, “Fran’s Song: My Mother’s Triumph over Alzheimer’s” and is available on Amazon Kindle. Kind regards, Ron

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  3. I’m delighted that Tanya Ward Goodman introduced me to this page. She’s an excellent writer.

    If you are open to including another book, I hope you will consider You Want Me to Do WHAT? Journaling for Caregivers. The Amazon link is https://www.amazon.com/You-Want-Me-Do-What/dp/1606962973/ref=pd_sim_sbs_14_2?ie=UTF8&dpID=41XvHwzgvTL&dpSrc=sims&preST=_AC_UL160_SR114%2C160_&psc=1&refRID=4M9VE1Y2QGW0JKH6NK83.

    My mother, who inspired the book, had undiagnosed Alzheimer’s. Thanks for considering it.

    B. Lynn Goodwin
    Writer Advice Managing Editor, http://www.writeradvice.com
    Author of YOU WANT ME TO DO WHAT? Journaling for Caregivers & Author of TALENT
    blynngoodwin.com

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  4. What a fantastic site! This is exactly what I would have wanted during the years I was caring for my mother. I was insatiable and couldn’t read enough. I so needed to read how other people survived and even thrived in such a difficult and heartbreaking situation. I, too, wrote my memoir with the idea of sharing my story so that others would have an emotional path to follow. Thank you so much for providing this wealth of wonderful Alzheimer’s literature!

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  5. I’m thrilled to have found this site via Cathie Borrie’s recommendation. As caregiver for my parents, both with dementia and Alzheimer’s, I can testify that it’s a lonely life (going on year three now). Writing about it keeps me sane, and I’m hoping to make new friends here. Thanks for creating this community, and please feel free to visit my own “raw” perspective at http://unforgettable.live.

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    1. Hi Lorrie, this is Jean Lee, author of Alzheimer’s Daughter, responding to you. Thank you for your kind words. I’ve checked out your powerful blog. Sounds like our journeys are very similar. I hope you find comfort through any of the books on our bookstore page https://alzauthors.wordpress.com/bookstore/. Both of my parents were diagnosed on the same day at age 86. They declined for nearly a decade before they passed. I was working full time as an elementary school teacher, and trying to manage their health, safety and care. Reading books in which others were willing to share their experiences with the disease kept me sane. When I read other similar situations, I thought, if they survived, so will I. Please stay in touch. Are you on Twitter? I’m @JeanLee18. You can also follow AlzAuthors blog through @AlzAuthors on Twitter. Blessings to you. You will remain in my thoughts because we have walked the same path.

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      1. Hi Jean Lee, so nice to e-meet you! Support is invaluable, and reading about other’s challenges helps enormously. My twitter handle is @lorriebeauchamp. Just found and followed you. I’ll also check out the bookstore page; thanks so much!

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  6. What an earnest group. I’ve read and drawn strength from many who are mentioned here. I co-authored a book, The Caregiver’s Secrets, about my 20+ year journey with my Mom. My hope is that caregiving conversations will move out of the parking lots and grocery store lines and into the mainstream. At least we’re above a whisper now and for that I’m grateful. My Mom once said, “Daughter, stay close. Sometimes I lose my place. One day I’m going to drift out there and not be able to find my way back to knowing you.”

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  7. Hello! I stumbled across your site today, thanks to Twitter. What a great idea! In case it’s helpful to anyone, I would like to share that I have just written a book as well. It’s called “Dancing around the Chaos”. Writing was quite the healing experience for me.

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