Meet Lynda Everman, editor of “Seasons of Caregiving: Meditations for Alzheimer’s and Dementia Caregivers”

 

unnamedBy Lynda Everman

“To all of you, I repeat: Do not let yourselves be robbed of hope! Do not let yourselves be robbed of hope! And not only that, but I say to us all: let us not rob others of hope, let us become bearers of hope!” – Pope Francis

I really can’t tell the story of our book, “Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers” without first telling the story of ClergyAgainstAlzheimer’s and the Faith United Against Alzheimer’s Coalition, as they are the result of the following loosely connected series of events.

Like many others, I was away from organized religion for many years. Late in 2009 a neighbor invited me to attend Sunday services with her. I had just reluctantly and painfully moved my husband to an assisted living facility.

Early the next year George and Trish Vradenburg launched their non-profit, UsAgainstAlzheimer’s. I was immediately drawn to their bold vision of stopping Alzheimer’s by 2020 and joined them as a founding member of both the Activists and Women’s Networks. Over the next few years, I came to believe that a network of interfaith clergy would offer an important and powerful voice in our efforts to advance better care, prevention, and ultimately, a cure for this merciless disease.

In 2014 UsAgainstAlzheimer’s Director Ginny Biggar and I set out to create ClergyAgainstAlzheimer’s and were quickly joined by an amazing team of passionate volunteers: Max Wallack, Rabbi Steven M. Glazer, Rev. Dr. Richard L. Morgan, and Dr. Daniel C. Potts.

We initially hoped to recruit about 20 interested clergy to be founders; but in just 4 months, we had over 110 founding members and went on to recruit additional clergy, laity and faith organizations.

With our interfaith network in place, it was Dr. Potts who suggested the idea for a book of meditations with these words, “Here is something to think about…” Literally, overnight, our thoughts melded into this project with an outline, a book title, original artwork, and a strategy for implementation; and in 5 months we published “Seasons of Caring.”

Our book was written to offer hope, encouragement, compassion and empathy to those on the difficult journey of caring for loved ones with Alzheimer’s disease and other dementias.

The book is organized around themes and metaphors of seasonal transition, with each of the four seasons paralleling the various stages of life. The 141 entries open with quotes from scripture, sacred text or other inspirational text. The original writings by 72 authors representing a great diversity of spiritual traditions range from thoughtful meditations to poignant personal stories, moving poems and meaningful songs. Each is followed by a prayer and words of comfort and encouragement.

We are grateful to our authors, caregivers themselves, who so generously gave of their time, experience and counsel.

The words of Pope Francis bear repeating as they well describe the intent of ClergyAgainstAlzheimer’s and “Seasons of Caring”, “Do not let yourselves be robbed of hope! And not only that…let us become bearers of hope!” Visit www.SeasonsofCaring.org to learn more about our mission and work, and to find resources for faith communities, including sermons, books, programs, and actions you can take that will help us defeat Alzheimer’s.

Seasons Editors

About the Author

Lynda Everman has spent most of her adult life – 24 years – as a caregiver, first for her mom who was paralyzed by a stroke and later died from complications of diabetes, then for her dad who, in 1994, showed symptoms of vascular dementia, and finally for her husband who was diagnosed with Mild Cognitive Impairment in 1997 and passed away from Alzheimer’s Disease in 2012.

It was because of these experiences, especially those related to the relentless individual and societal toll of dementia that Lynda was called into advocacy for increased awareness, better treatment, prevention, and, ultimately, a cure for Alzheimer’s and related dementias.

She and fellow advocate Kathy Siggins have mounted a national campaign for a semipostal (awareness and fundraising) stamp for Alzheimer’s research and have created the Help Stamp OUT Alzheimer’s facebook community to further this effort.

Lynda is a board member of B.A.B.E.S. (Beating Alzheimer’s By Embracing Science), a founding member of ActivistsAgainstAlzheimer’s,  WomenAgainstAlzheimer’s, and has recently served as founder and convener to ClergyAgainstAlzheimer’s.  She is an editor and contributor to “Seasons of Caring: Meditations for Alzheimer’s and Dementia Caregivers”, an interfaith volume with more than 140 original meditations from seventy religious leaders and care specialists representing seventeen faith traditions. She and her husband, Dr. Don Wendorf, have served as editors for the Leader’s Guide for Seasons of Caring and Treasure for Alzheimer’s, both written by Dr. Richard Morgan, a fellow Clergy Network founder and well-known author on issues of aging and caregiving. Because of her relentless advocacy, she has been recognized by Maria Shriver as a woman of  influence in the Women’s Alzheimer’s Movement and included on Maria’s “Big Wall of Empowerment”.

A retired Human Resources professional from the University of California, Lynda is determined to change the trajectory of Alzheimer’s disease through public policy, increased funding for biomedical research, and recruitment of volunteers for clinical trials. Lynda is honored to speak on behalf of those with dementia and their loved ones and has addressed caregivers with her powerful message of being “The Voice: Advocating for your Loved One.” She may be contacted via the Help Stamp OUT Alzheimer’s facebook page, on Twitter @helpstampoutalz or by email @ ldeverman@icloud.com.

National Caregiver Appreciation Month eBook Sale & Giveaway November 15-21

Caregiver App Month Canva 2017

November is National Caregiver Appreciation Month, a time to recognize the long hours, sacrifice, and love all caregivers bring to the task of caring for a loved one with dementia or any long-term illness. In honor of their efforts, AlzAuthors is hosting an eBook sale and giveaway! This is a terrific way for caregivers who are looking for knowledge, guidance, and support to find carefully vetted books to help guide and inspire them everyday. Continue reading “National Caregiver Appreciation Month eBook Sale & Giveaway November 15-21”

“The Beach Poems” by Ann Campanella

CvrBeachPoems_AdExpressing the Inexpressible through Poetry

By Ann Campanella

When I was in my early thirties, my mother began showing signs of Alzheimer’s. She was 41 when I was born, so I suppose it shouldn’t have been a shock to see her aging in this way. But it was. Continue reading ““The Beach Poems” by Ann Campanella”

Meet Gerda Saunders, author of “Memory’s Last Breath”

By Gerda Saunders

A few days before my sixty-first birthday, I was diagnosed with cerebral microvascular disease, which is the leading cause of dementia after Alzheimer’s disease. My mother also had dementia. Continue reading “Meet Gerda Saunders, author of “Memory’s Last Breath””

Meet Peter Maeck, author of “Remembrance of Things Present”

0By Peter Maeck

The experience of writing a poem, play, or story, or creating a photograph, is like riding a train through wonderful, unexpected scenery. When I wake up in the morning I hurry to get to work because I never want to miss that train. My train derailed the morning of my father’s Alzheimer’s diagnosis. Dad hadn’t chosen a trip into dementia but here he was on track to forget his friends, his family, and even his own name. Dad Continue reading “Meet Peter Maeck, author of “Remembrance of Things Present””

Meet Marita Golden, author of “The Wide Circumference of Love”

Golden, Marita CoverSilent Storm: What We Remember, What We Forget, What We Discover

A Novelist Meditates on Writing about Alzheimer’s

By Marita Golden

I didn’t choose. I was called. That’s how inspiration, art, and creativity work sometimes. I am often asked why I wrote a novel about Alzheimer’s disease. Continue reading “Meet Marita Golden, author of “The Wide Circumference of Love””

Meet Philip D. Sloane, MD, author of “Alzheimer’s Medical Advisor: A Caregiver’s Guide”

The Alz Medical AdvisorBy Philip D. Sloane, MD

I was six years into my medical training – a second year resident in family medicine – when I saw the first patient who I now know had Alzheimer’s disease.  A middle-aged man brought her in, explaining that she was his mother and that the family was at wits end.  His mother didn’t seem sick, he explained, but she couldn’t remember “anything,” made poor decisions, and would wander off and get lost if left alone.  In the examining room, she wouldn’t sit down.  From my limited history and examination, it Continue reading “Meet Philip D. Sloane, MD, author of “Alzheimer’s Medical Advisor: A Caregiver’s Guide””

Meet Niki Kapsambelis author of “The Inheritance”

The Inheritance book cover FINALBy Niki Kapsambelis

On a drizzly April day in 2009, I walked into a hotel suite in downtown Pittsburgh to meet members of a North Dakota family stricken with a rare genetic mutation that guarantees early-onset Alzheimer’s disease.

My life changed profoundly that day. Up to that point, I knew precious little about Alzheimer’s. I was a journalist on Continue reading “Meet Niki Kapsambelis author of “The Inheritance””

World Alzheimer’s Month eBook Sale & Giveaway Now through September 30!

September is World Alzheimer’s Month, the international campaign by Alzheimer’s Disease International (ADI) to raise awareness and challenge the stigma that surrounds Alzheimer’s and other dementias. In recognition of  this event, AlzAuthors has put together an eBook sale and giveaway! Continue reading “World Alzheimer’s Month eBook Sale & Giveaway Now through September 30!”

Meet Candy Abbott, author of “I’ve Never Loved Him More”

9781938796081 COVER - Front RGBBy Candy Abbott

I’ve Never Loved Him More

A Husband’s Alzheimer’s, A Wife’s Devotion

“Mom,” my daughter Kim said, “You know you’re going to have to write a book about how you’re dealing with Dad.”

I recoiled at the thought. It was all I could do to get through each day of unknowns and added responsibilities. “No, hon. I have to live this before I can write about it. I have no energy to think about ministering to others right now. Maybe after it’s all over—maybe then, I could think about writing—but not while I’m dealing with all this raw emotion. I’m still finding my way.” Continue reading “Meet Candy Abbott, author of “I’ve Never Loved Him More””