By Carol Bradley Bursack
It started with Joe.
My neighbor Joe’s wife died. Joe was in his 80s, his only child lived across the country and he was totally deaf. How could I not help? My children were then young. We grew to love Joe, but I had no way ofknowing that he would become my charge for over five years. Still, I don’t see that I could have done things differently.
After Joe’s death, my own elders started falling like dominos into my caregiver’s arms. First, my childless aunt and uncle moved to our community to be close to family. Before long, my uncle started having strokes and my aunt died of cancer. Meanwhile, my in-laws’, as well as my parents’, health began to crash. At one time, I was running between care-settings six or seven hours a day, six days a week and a few hours on Sundays when I had some backup. I never thought about the fact that this could go on for two decades.
My example echoes that of many. We go into caregiving – usually gradually – thinking in the short term. For most people, caregiving lasts much longer than anticipated. I now know that I should have taken better care of myself from the start. I hope, through my work with caregivers, that I can help them do what I didn’t do. I hope to help them learn the importance of self-care.
During the mid to later years of caregiving, I wrote Minding Our Elders: Caregivers Share Their Personal Stories, though the “Epilogue” was written after my last three elders died.
For years, I combined freelance writing with caregiving, but eventually I had to return to the “real” work force even though I still had three elders who needed me and an ill son. We do what we must. I learned, on-the-fly, the skills needed in the modern world – mostly technical. Eventually, through my job as librarian/news researcher at a newspaper, I was able to write an elder care column, also titled “Minding Our Elders.” Now, “Minding Our Elders” is a full-service writing business.
The book Minding Our Elder’s is a portable support group. As the name implies, I am a strong advocate for caregivers, but also elder dignity.
Grieving begins when adult children begin to see their parents’ decline. They need support thro
ugh the whole process. Minding Our Elders: Caregivers Share Their Personal Stories brings that support to the caregiver. Three in the morning and you can’t call a friend? No problem. The storytellers in the book understand. Read one story. Read two. Feel the comfort and support of others who have gotten through this. Tomorrow is another day.
Through my book, I offer emotional support. Through my newspaper column, I give practical advice and resources. Through all of my work – my blog, column, caregiver’s forum, speaking, and my role as writer and forum moderator for major caregiving websites – I offer support from the caregiving trenches. My website and blog bring it all together at www.mindingourelders.com and www.mindingoureldersblogs.com.
The responses that I’ve received from readers have been humbling and gratifying. The reward of knowing that my elders’ suffering, particularly that of my dad who had dementia and inspired my first book, makes me aware that this is a team effort between those for whom I’ve provided care and my own dedication to carry on their legacy while I attempt to help others navigate their caregiving journey.
6 Responses
Thank you Carol for sharing your story. You have so many ways to share support: “Grieving begins when adult children begin to see their parents’ decline. They need support throughout the whole process.” They do indeed, and here you are. Thank you.
trynrose, you warm my heart. My elders – particularly my dad- wanted his experience to be a way to teach others. I’ve tried to carry that forward. People like you make it easier, emotionally, for me to keep the painful moments “fresh” because I realize that my loved ones are still part of life. You make it all worthwhile. Blessings.
I truly admire you, Carol, for your fortitude, devotion, respect and love shown so selflessly to the elders in your life. They, and we learning about your remarkable caregiver’s journey, are surely better off for it. Best wishes!
Hi roncooper, thanks for your lovely thoughts. Our journeys are unique, but there are so many things to share with one another that can lighten the load. I’ve been blessed to see the support among caregivers flourish during these last years. Short of our elders never needing to suffer, which isn’t realistic, this caregiver support is one of the most wonderful things that could happen. Take care of yourself.
i have a friend who has ALS. I don’t know what to say, or do, or even take for her, when I visit. I am usually asking questions to her husband and not talking to her. she can not talk and gives you a thumbs up for how she feels or ok, when asked if she wants to take a walk.
I’m sorry that I just saw this, Linda. You were kind to keep visiting your friend. That’s important when you can. Take care of yourself, too.
Carol