Dementia Caregiver Dody Cox Finds Writing Her Memoir a Cathartic Experience

Adv in Mother-SittingBy Doreen (Dody) Cox

I never planned on becoming my mother’s caregiver, nor, throughout the experience, considered writing a book. In a way, both just happened. I enjoyed my job as group counselor at an alternative school. It wasn’t easy to give up my salary and health benefits, but when my mom asked me to take leave, help her get settled somewhere, I felt a stirring in my gut to hang in there with her. Her mental and physical abilities were in a downward spiral because of vascular dementia—she needed me. In hindsight, I needed her, too. My soul was in its own state of flux.

Adventures in Mother-Sitting is titled “Adventures” because dementia’s unpredictable nature took my mother and me on a tumultuous journey. Grief’s darkest emotions twisted my psyche upside down. Yet intermingled with terrifying, panicky instances, there were funny, endearing connections between us, even sweeter when she regressed into being my child.

After she died, I dealt with grief by turning the experiences (noted in my journal) into a memoir for family and friends. I had to write—within me was a burning desire to feel clearheaded again, to purge the helplessness, hopelessness, despair, and guilt out of me. The rewards came daily. I’d had numerous meltdowns while caring for my mom. After each episode, I wanted out, though not because of her dementia-addled behavior. I wanted to escape deep-seated feelings of inadequacy, disappointment. Discovering the gems embedded in those episodes was restorative. We’d laughed a lot, and I had persevered, not been defeated by dementia’s challenges.

Getting Adventures written honored my mother’s long-held wish, for me to write a book. Afterward, my goal was merely to get through each day—it had only been six months since her death. But an unexpected encounter with a friend who had just published his memoir infused me with purpose: “Tell your story, Dody. Give back by sharing your experience.” My friend was a hospice chaplain.

Grief is a powerful force with which to reckon; its fierceness hit me hard after the memoir was published. Sisters and friends helped me through the darker days. For several years, I couldn’t look at my memoir, relive the experience. Family, friends, and readers agreed that it was good— so, I let it be. Their feedback validated reasons to publish: my story did help others cope with their feelings of inadequacy and guilt, and their comments eased my own lingering bout with unwanted emotions.

Writing became a passion. While writing a short story about endings, titled A Sacred Journey, I learned this: to hone one’s writing skills, be open to feedback from beta readers and other authors. It was exhilarating to feel my short story come alive as I refined passages based on readers’ suggestions.

Thoughts about Adventures began to niggle me (four years later). Reviews confirmed that the story engaged readers well enough, but one review in particular offered suggestions about the writing itself. When I perused the memoir, I found aspects that didn’t measure up to the quality I wanted it to have. A new author friend’s encouragement fired up my enthusiasm.

Doing a revision of Adventures was one of the more meaningful experiences of my life. It was intensely cathartic—I relived every experience I’d had with my mom. Rewriting segments tumbled me back into grief, yet re-experiencing the sweetness embedded in our final years together made the effort worthwhile.

As many know, coping with a loved one’s dementia is extraordinarily challenging, even life-altering. My experience was rewarding in so many ways, yet I’d never have made it without support from family, friends, professional helpers, and hospice staff.

Share the Post:

12 Responses

    1. Hi, Ron! Thanks for stopping by to read and comment. Have a flavorful day, an interesting week!

  1. Great blog, Dody! Adventures in Mother-Sitting is a truly extraordinary book that goes far beyond a memoir. The spirit in which you dealt with everyday adventures was really something special. The way that you found joy where there was sorrow was truly uplifting.

    1. Thanks, Lisette, for your never-ending support. I’m so glad we met during the time when you were there for your mother – very special.

  2. Such a heartfelt memoir, Dody. When your mother needed you the most in life, you were there for her. Despite the challenges you accepted them. It couldn’t have been easy but you stayed the course. Hugs to you, sweet lady!

    1. Hi, Jan! Your hugs warm my soul like sunshine – sparkling, vibrant surges. Thank you, dear friend.

  3. Thank you for sharing your story here and in your book. I imagine it has added some clarity and reassurance to those caring for a loved one, and also for others like myself. It takes a certain kind of person to do as you did. You’re an amazing woman. 😉

    1. Hi Lisa! I’m delighted that you dropped by during your Tuesday, as your night-time settles in. Best wishes to you and your family.

  4. Hi, Dody! I’m so glad to read a new blog post by you! And what a moving, enlightening post it is. Having never written non-fiction at all, let alone a memoir or especially one about such a powerful subject, I had no clue how you took those experiences and wove them together into Adventures In Mother-sitting. Kinda cool that writing your wonderfully fantastical A Sacred Journey gave you a little bit of a push in the direction of publishing your memoir. :-}

  5. Hel-lo, Nikki! Your comments always ring my chimes, almost as much as your short stories tickle my fancies! Thanks, friend, for stopping by.

Subscribe to Our eNewsletter

SUBSCRIBE to our weekly eNewsletter! Be among the first to know about new authors, podcasts, events, and more for help on your dementia journey. As a welcome gift, you may download our FREE booklet “Caring for a Mother with Dementia,”  featuring 15 quality titles. Subscription is through You may unsubscribe at any time.

Support Our Mission

Your support enables us to continue to provide quality resources for dementia caregivers. We appreciate any donation. Thank you for your support!